Cathy from Chicago, USA
My wife Cathy was diagnosed with Degos a little over a year ago. We tried talking with as many family members as possible to see if we could find a prior family member who might have had it. We could find a single case in her family tree. The lesions have appeared on her hands, arms, neck, chest, stomach, legs, and feet. She has new lesions appear every month. More lesion than we can count or too many to try to count. They are small, hardly noticeable when fully clothed. The summer time made her nervous about the type of clothes she put on because of the number of lesions on her body.
We have 2 young boys 1st is 13 and the youngest is 11 years of age. We have not mentioned anything to them about the illness. They have noticed the marks on Cathy’s body but we haven’t told them what it is! We thought it best that they don’t know unless her symptoms become worse.
We can only pray that they don’t.
Her lesions do not itch and after a few weeks they go away but new ones always appear. We are trying to locate patients in the Chicago area. We both work in the down-town area and we would love to hear from anyone else who might be going through the same questions that we have. If you would like to talk! You can contact us at firstname.lastname@example.org
Catherine & Richard