James from New York, USA
I’m 32 year old black male. I was diagnosed with SLE 11 years ago. Now in 2004 I went to the dermatologist, after noticing white spots and my hand would hurt. Who told me that I had Reynodes Disease, they gave me some creams and sent me home. As they spots began to develop I started getting ulcers, so I went for a second opinion to which a biopsy was done. Which led to an infection where I almost lost my hand. Come to find out it was Degos Disease. I was told about the one case for the nicotene patches, so I’ve been using them and now I get rashes from every use. Right now im taking Prednisone and was on Cellcept. I take Oxycodone and Oxycontine for pain. Sleepless nights and for that I take Ambien. The past couple days I’ve been getting more ulcers and more pain. I don’t know if Aspirin or anything else works please let me know. Wish you all luck. I’m here for anyone who needs to talk.
Well here I am, 2 years later people ask me how I’m doing well. I woke up this morning: is that a bad thing or a good thing? Well I’ve been getting new lesions, mainly the feet and legs, on my ears, along with my chest etc. I’ve spent most of my summer in hospitals. Pain has been not too bad. I videoed myself, took pictures. I have sores everywhere, although the ones that hurt are my hands and feet where most of the pain relies. The sores are mainly dealt with is to let them dryout then wash the off everyday in the shower, somewhat like wet to dry. I’ve been using cocoa butter mixed with shae butter and vaseline – its expensive but works really good. It can be bought at CVS 10 dollars a jar but does it’s job well. I’m tired of typing… I have pics and videos, if you’d like to see them let me know.
Page last modified on 8 December, 2008