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Loli from Madrid, Spain

Loli from Madrid, Spain
November 7, 2017Degos Disease Web AdminPatient Stories

Me llamo Loli tengo 37 años y vivo en Madrid y me diagnoticaron la enfermedad de Degos en 1996 despues de que perdiera la vision del ojo izquierdo, tengo lesiones en la piel pero por suerte no han evolucionado y aunque sigo con revisiones con mi dermatóloga no tengo nuevas lesiones y soy optimista y pienso que no se me va ha desarrollar y que no tendré problemas intestinales ni cerebrales. Hay que pensar en positivo, vivir y disfrutar que la vida merece la pena. Si algún paciente de esta enfermedad de España (o de cualquier parte del mundo) se quiere poner en contacto estaré encantada. Mi correo es: lolaherndez@hotmail.com

Approximate translation:

My name is Loli, I am 37 years old and live in Madrid. I was diagnosed with Degos Disease in 1996 when, because of it, I lost the vision of my left eye. I have skin lesions, but they have luckily not evolved and although I have regular check-ups with my dermatologist I do not have any new lesions. I am optimistic and I think that one does not go away has to develop to me and that I will not have intestinal nor cerebral problems. You have to think positive, to live and to enjoy that the life is worth the trouble. If some patient of this disease of Spain (or any part of the world) would like to contact me I will be enchanted. My e-mail address is: lolaherndez@hotmail.com

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