Rich from Boston, USA
My sister, Mary, was diagnosed with Degos Syndrome at birth. Doctors gave her about 2-3 years but fought on until just 2 months before her fourth birthday. I was just a month away from my 7th birthday.
We live in a suburb of Boston and were lucky enough to have some of the greatest health care professionals in the world work on Mary’s diagnosis at Children’s Hospital in Boston. The ones who stick out were the nurses however. My family still gets Christmas cards from them every year after more than 10 years now. And two of them told us how they still have a picture of my sister on their desk. For you health care providers out there, you make a world of difference to the patients and their families.