Stephanie USA

Hiyas! My name is Stephanie! I am a 23 year old stay at home mom. My son Sedric is the highlight of my life, along with my Superman (Chaz) & our goofy Boxer, Titus!
I was diagnoised around 1995, possible 1996 with Degos. I have seen a doctor at the University Of Chicago & one in my home town, who was pretty much dumbfounded about my condition!
I do have others in my family on my maternal side with some spots. I also have had a great Uncle that died from internal and external Degos, which was long before I was conceived! I actually seen the same doc that treated him…weird!
I guess I am just as curious as everyone else about Degos! I am interested in talking with outhers, so just e-mail or call me!!!
~ Lots of Love!
~ Stephanie