Support is on the horizon
Where patients, researchers, physicians, and all who are affected by Degos disease globally, come to find answers about this very rare disease.
Welcome to the Degos Disease Foundation Website
What is Degos Disease?
Degos disease, an ultra-rare disease, often shows skin lesions with a unique look—white centers surrounded by red rim. In some cases, it can spread to other organs like the stomach or brain, leading to serious complications if not treated properly and quickly.
Do you think you could have Degos disease?
Take the next step
Diagnosing Degos disease can be quite tricky, given its rarity. Dive into our Path to Diagnosis infographic to unravel the mystery!
-
Check out our events page for upcoming events and a look back at past highlights.
-
Visit our patient & families page to learn about early diagnosis of Degos disease and take charge of your health!
-
Explore our dedicated physician page for valuable resources and information tailored just for you.
-
Want to learn more about the science? Take a deep dive into the research.
Meet Theresa
Theresa Slayton, RN
Degos Disease Foundation Website Administrator
Steffens Foundation Board Member
Home Hospice Nurse Case Manager
Allied Integrated Health Systems
Scranton, Pennsylvania USA
Theresa, a seasoned Registered Nurse, has dedicated over two decades to healthcare, specializing in rehabilitative medicine, oncology, and hospice care. Since being diagnosed with Systemic Degos disease in 2014, she passionately administers degosdisease.org, collaborating with medical professionals and the Steffens Scleroderma Foundation to support patients and advocate for treatments to combat the disease.
Resources
We’ve complied a host of resources, including links to other websites, that may be helpful for you on your journey.
In Memoriam
-
Tribute to Ernie DuPont
By Sue DuPont
-
Tribute to Dr. Jessica Ann Pye
By Julie Kanara
-
Tribute to Adam Lefkowitz
By Dina Lefkowitz
Honoring Judith Calder
This website was originally created by Judith Calder, a Degos disease patient from Sussex, England. Her dedication and vision have been a tremendous support to Degos patients worldwide. We are proud to bring new life to her ideas and continue her legacy of support and awareness.
Get in Touch
Feeling lost or in need of assistance? We’re here to support you! Don't hesitate to reach out to us today.
Support Us
With your support, we're making groundbreaking research happen. Explore our events page or make a donation!