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Featured News

Award winner Dr. Lena-Luise Becker (r.) with Care-for-Rare Managing Director Petra Thollembeek

Download Previous Newsletters

  • June 2024 Newsletter

    • Cruise For A Cure- Sunday, July 14th Tickets on SALE NOW

    • June 29th is World Scleroderma Day

    • Fall Festival & Barbeque: Save the date - Sunday, September 29th

    • Tribute to Dr. Jessica Ann Pye

    • Summary : Annual IPE Programming

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  • March 2024 Newletter

    • IPE 2024 Virtual Program Scheduled Wednesday, April 10th

    • Scleroderma Research Update - Scleroderma in Pigmented Skin Populations 

    • SAVE the DATE- Sunday, July 14th Cruise for a Cure 

    • Degos Disease Foundation New Logo and Research Update

    • New Board of Director - Welcome Paula Birch Billingsley 

    • Fall Festival scheduled September 29th 

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  • December 2023 Newsletter

    • Recap of 8th Annual Fall Gala

    • Estate of the late Dr. Donald Thurston

    • American College of Rheumatology Annual Conference

    • Dr. Jessica Farrell awarded Distinguished Educator Award

    • Welcoming New Volunteers

    • The New York Dental Journal published article "Steffens Scleroderma Foundation Interprofessional Education Event" authors David Leader, D.M.D,. M.P.H.; Daniela Bittar, D.D.S.; Evamarie Cole

    • Mogil's Mobcast

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  • September 2023 Newsletter

    • Fall Gala

    • Recap of Cruise for a Real Cure 2023

    • Welcoming a New Board Member

    • National Scleroderma Annual Conference

    • Measurements of IPE Impact

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  • June 2023 Newsletter

    • National Scleroderma Month Happenings

    • 2023 Interprofessional Education Forum

    • Dr. David Leader

    • Degos Disease Q&A

    • Research Updates

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  • March 2023 Newsletter

    • The Legacy of the Meenans

    • 2023 Interprofessional Education Forum

    • Dr. Michael Hughes

    • Research Updates

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  • September 2022 Newsletter

    • Degos Disease Support Network Interprofessional Education Forum

    • Celeste Freeman receives ASHT Paul Brand Award

    • Mogil's MobCast

    • Dr. Michael Allen Joins Steffens Medical Advisory Board

    • Amy Geitzen presenting at the American College of Rheumatology

    • Giovanna Fichera, OTD, Research Update

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  • June 2022 Newsletter

    • Interprofessional Education Forum

    • How does IPE move forward?

    • The Art of Advocacy Seminar

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