Physician Support Network

This group of medical leaders have been involved with diagnosing, treating, and/or doing research for Degos disease and other similar diseases.

  • Dr. Lee Shapiro, MD

    Dr Shapiro is medical director of the Degos Disease Foundation and cochairs our quarterly research meetings. He also directs the scleroderma clinic at Albany Medical College. He was co-chair of the 2018 international symposium on Degos Disease at the NIH. 

    Scleroderma Center
    Albany Medical Center
    6 Medical Park Drive, Malta, NY 12020

    Phone:+1.518.264.1200

    Email: shapirl@amc.edu

  • Dr. Elizabeth Kessler, MD

    Beth Kessler is a pediatric rheumatologist in Grand Rapids, Michigan.  She has witnessed the strength of the Degos Disease Foundation in optimizing care of patients with this rare disease.  She is interested in the advancement of therapeutics and improving access to them.

    Michigan State University College of Human Medicine
    15 Michigan St NE, Grand Rapids, MI 49503

    Pediatric Rheumatology

    Email: Elizabeth.Kessler@helendevoschildrens.org

  • Dr. Manfred Boehm, MD

    Center for Molecular Research NHLBI–NIH
    10 Center Drive MSC1454
    Bethesda, MD 20892, USA

    Telephone: +1.301.435.7211

    Fax: +1.301.451.7090

    Email: boehmm@nhlbi.nih.gov

    Languages Spoken: English and German

    Nurse Jessica Caidor, RN, BSN Email: jessica.caidor@nih.gov

  • Dr. Cynthia Magro, MD

    Weill Cornell Medicine
    Department of Pathology
    & Laboratory Medicine
    1300 York Avenue, F-309
    New York, NY 10065

    Phone: +1.212.746.6434

    Fax: +1.212.746.8570

    Email: cym2003@med.cornell.edu

  • Dr. Patrick Whelan, MD, PhD

    UCLA Department of Pediatrics
    200 Medical Plaza, Suite 265
    Los Angeles, CA 90095

    Phone: +1.310.206.1826

    Fax: +1.310.825.9832

    Email: Jpatrickwhelan@gmail.com

  • Prof. Dr. Christos Zouboulis, MD, PhD

    Director of the Departments of Dermatology, Venereology, Allergology and Immunology, Dessau Medical Center and Founding Professor of Dermatology and Venereology at the Brandenburg Medical School Theodor Fontane
    Auenweg 38
    06847 Dessau-Roßlau, Germany

    Phone: +49.340.5014000/1 (Secretary Ms. Engelmann)

    Fax:+49.34.5014025

    Email: christos.zouboulis@klinikum-dessau.de

    Languages Spoken: English, French, German and Greek

  • Sergey Yakushenko (Сергей Якушенко)

    Phone: +79601521422 

    Email(s): Doctorserg86@gmail.com
    Doctorserg@yandex.ru

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