Having read so many stories, I thought I should add my own which is, to date at least, a happy one.

I was diagnosed, by the third consultant dermatologist that I saw, with Degos disease in 1997. They thought it was lupus at first. 

I was 39, and told that it was “extremely serious, potentially fatal disease” by people with, let’s say, a less than perfect bedside manner.

I quickly developed hundreds of small lesions over my whole body, mainly the trunk, but not my face or neck.

I had quite a lot of treatment in a strong sun machine (being told that skin cancer was a possible side effect!) and was put on 300mg of Aspirin a day. There has been no other treatment.

Ten years later, I haven’t had any new lesions for about four years, and the old ones have faded to a sort of pearl white and are no longer too much of an eyesore. 

I have been told that I may have a form of non-malignant Degos disease. They don’t really know, and who knows if the asprin works? 

Occasionally I forget to take it and nothing seems to happen.

No one seems to know what causes this, of course. I am told that it may be an autoimmune issue, which is interesting as I also have mild Vitiligo, which I gather is also an autoimmune condition.

Anyway, good luck to everyone.

Nick