In year 2000, I was 21 years old, I was diagnosed with Degos disease. 

The doctor said, that this disease leads to death, so I was very shocked. 

Then I was in Universitätsklinik Würzburg for many tests, where it was revealed that my Degos disease is only cutaneous (skin only), not systemic. In the next year, I had to take aspirin and Pentoxifylline. Nevertheless, I developed 35-40 lesions.

When I was 22, I became pregnant, so I discontinued the medications. In July 2002, my son Aaron was born, and the last lesion I got was during my pregnancy. Since the birth of my son, I haven’t gotten a new lesion, and I don’t take any medications for Degos disease. 

This year in July, my son will be two years old, and I often have a fear, that I have transmitted my Degos disease, but my hope is that I have a benign form of Degos disease that was not passed on.

All patients I wish power and hope for life!

Steffi