Hiyas! 

My name is Stephanie! I am a 23-year-old stay-at-home mom. 

My son Sedric is the highlight of my life, along with my Superman (Chaz) & our goofy Boxer, Titus!

I was diagnoised around 1995, possible 1996 with Degos disease. 

I have seen a doctor at the University Of Chicago & one in my home town, who was pretty much dumbfounded about my condition!

I do have others in my family on my maternal side with some spots. 

I also had a great Uncle that died from internal and external Degos disease, which was long before I was conceived! 

I actually saw the same doc that treated him…weird!

I guess I am just as curious as everyone else about Degos disease! 

I am interested in talking with others, so just e-mail or call me!!!

Lots of Love!
~Stephanie